About Me – Camilla – Updated June 2025

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Camilla – Summer 2024

I’ve joined Substack! In doing so, I created an up to date About me. Thought I would share it here, too. If you’re on Substack, let’s connect there!

My name is Camilla Downs (pronounced like Pamela, but with a “C”), and I’m mom to Lillian Darnell and Thomas Darnell, who are now adults. I have single-parented them and advocated for them from the time they were 1-year-old and 5-years-old. We are a neurospicy trio, with all of us being neurodivergent in one way or another.

I’m late diagnosed with ADHD, Anxiety, and OCD. I am a bestselling author, indie publisher, writer, poet, and prior to becoming a mom, I enjoyed a career as a paralegal, working at The Pierce County Prosecutor’s Office — Civil Division in Tacoma, Washington. I’m also a late bloomer with coming out as bisexual; pansexual to be more specific (thanks to my kids).

Currently, I am a Project Leader and Family Navigator, having been with Family Navigation Network since February 2022. Family Navigation Network is a project of Nevada Center for Excellence in Disabilities, which operates within the University of Nevada, Reno.

I consider myself to be a master improviser and problem solver. I can access a situation, nail down the tasks, take action, and get results. I live in Northern Nevada in the foothills of the Sierra Nevada Mountains with gorgeous Lake Tahoe nearby.

A photo of Lake Tahoe taken from a distance (Hwy 431), with a blue sky and a tree in the right hand side of the photo.

Lake Tahoe — Taken by me 2024

My daughter Lillian has 18p-, being diagnosed when she was 3 years old after the pediatrician suggested genetic testing, due to Lillian being behind in more than three areas of development. The pediatrician called me as soon as she got the results, letting me know over the phone, rather than postponing until we could get in to see her.

After pulling myself together, I found the Chromosome 18 Registry that night while searching online. This was before facebook, and social media groups, and I joined The Registry shortly thereafter. I spent time observing the conversations in the Yahoo listserv before jumping in, introducing myself, and asking questions.

Writing has been a sanity saving bridge that has led to peace and solutions. Single parenting two children, losing nearly everything, and choosing to dig deep within, led me on a journey for which I had no map. Through writing, I created the map as I traveled this wild, at times unlovely and uncomfortable, life journey.

Writing led me to acceptance of myself and my role as a parent to my two unique and beautiful children. Writing brought solid steps to take with decisions. In some situations, writing was not the only factor; yet, it has been a shining thread of grace that connected my heart and mind along this life journey. And still is.

I wrote the first poem in January 2013. I still remember how wild it felt having these words populate my mind and how compelled I felt to free them. It was the beginning of the alchemy. Alchemy which continues to this day. My book published in 2019, Words of Alchemy, is a free-verse poetry memoir of six years of my life.

Poems have not been the only style of writings throughout the past thirteen years. My first book published in 2012, D iz for Different — One Woman’s Journey to Acceptance, is a memoir of experiences and acceptance up to that point in time. After the publication, writings seemed to ebb and flow between life narratives and poetry.

Writing is my witness, my soul song. Writing is my therapist, my medicine, my best friend, my parent, and my advisor. This is not to say that writing replaces any of these roles, it simply enhances them.

Writing alchemizes what I experience. My laptop becomes the couch I rest upon; while writing my experiences becomes the therapist. This helps me to synchronize with life, giving myself feedback for these experiences. Writing becomes an avenue to connect with and release the myriad of emotions and experiences of life.

It is through writing that I find myself. It is through writing that I allow myself to physically feel emotions. It is through writing that I connect with the unlovely events of the past buried in my body on a cellular level. It is through writing that I allow myself to feel what I dared not feel beginning at some point in childhood, through to adulthood. It is through writing that past and present events are alchemized and released.

I look forward to vibing with you. Just to let you know, my older writings are incredibly tame, nature centric, with no foul language. My writings from 2020 to current are wild, bold, raw, and laced with cussing. My writings mirror where I am in this journey, and the current phase of Camilla that shines.

A family of five. A smiling mom in the front, with her oldest smiling daughter to her right, two smiling grandparents behind them, and the mom’s youngest child, smiling in the back.

Me and my two kids, Thomas and Lillian, and my mom and dad — May 2024

If you’re on Substack, let’s connect –

https://substack.com/@camilladowns

 

The Finish Line is in Sight

I can soon officially say, “I DID IT!”


A very tired me – January 18, 2026

Update

Tomorrow I begin Spring 2026 semester at UNR, and my last one before graduating in May!

Apologies to the 1 or 2 folks who were reading my writings! The last 3 semesters, especially the last semester, have kicked my ass. I had absolutely no time for anything but doing the classwork. It’s all good though, as most of it has been reading and writing.

On May 15, 2026, me and my 20 year old kid graduate from the University of Nevada, Reno. Me with an Interdisciplinary Degree in Creative Writing and Social Justice, and Gigi with an Interdisciplinary Degree in Creative Writing and Digital Game Design. Check this out! Me and Gigi have poetry class together! This will be interesting!

After I decompress for a few weeks, I’ll hopefully get back to writing and sharing here, and get caught up on posts from the past 6 months. Thanks to the few that stick around!

During winter break, I did more work organizing and cleaning Lillian’s room (my disabled 24 year old daughter), re-arranged and re-decorated the living room, and we (me, Lillian, and Gigi) had a photo shoot yesterday for an upcoming March magazine article.

I am pleased with the look and feel of the living room. I didn’t get finished with the movie wall. I’ll come back around to it after the semester is done. Lastly, after nearly 20 years, I finally found another hat I like on my head! I lost my favorite and only hat 20 something years ago. Yay!!

First Week of Senior Year Done

August 30 2025

First week of senior year done! I’m really going to enjoy film theory, poetry, creative nonfiction, and politics in science fiction film and literature. The sci-fi class is nearly 3 hours long. It’s only once a week, so that’s good. But sitting still for 3 hours is going to be torture.

The math class isn’t that bad. It’s just the amount of time it takes. I can read and write lightning fast. But I have to slow down for the math. That’s even more torturous than sitting still for 3 hours. But thank goodness it’s online and I have access to tutors if I need it. When you haven’t done this type of math for over 30 years, it’s like trying to learn a foreign language!

Just a reminder that I won’t be on social media much during the semester. If you message me and don’t hear from me in about a week, give me a nudge. You’ll see me pop in on the weekends, though. Here’s my stack of books for the semester. So exciting! The math book is digital. Thank goodness! Oh, it is so very cool when I’m walking to class and I look up to see my kid walking towards me. I really love that so much! xoxo

Limber – essays by Angela Pelster
Brown Neon – Essays by Raquel Gutiérrez
Time is a Mother by Ocean Vuong
African American Poetry – 250 Years of Struggle and Song
When My Brother Was an Aztec by Natalie Diaz
Collected Poems of Rita Dove: 1974-2004
Life Stories: Profiles from The New Yorker
The Art of the Personal Essay
Super Gay Poems by Stephanie Burt
Husbandry – Poems by mathew dickman

First Day of 16th Grade for Camilla

August 25 2025

First day of school!! With a moody sky! ✊💙🎉💙✊

Fall Semester 2025 Begins!

August 23 2025

Fall semester at UNR begins on Monday! You will see less of me around here. I may get the chance to post here and there during the week and I’ll pop in on the weekends. If you message me, and don’t hear back within a week, give me a nudge.

Thank you to the folks who have subscribed, with an added hug to my one paid subscriber, my lovely step-sister. I’m deeply grateful to all of you for allowing my writings to populate your email inbox.

My classes:

Poetry

Creative Non-fiction

Film Theory: This course moves from film theory’s beginnings in the silent era and progresses to our contemporary moment. We will pair key moments in film theory’s history with a variety of film examples to gain a theoretically sophisticated vocabulary for discussing what movies are and do.

Science Fiction and Politics: Explore social and political implications of scientific and technological advancement through the lens of science fiction film. Themes include speculative politics, social change, surveillance, race and identity, and the environment. Use imagination and skepticism both to create original science fiction that: 1) contemplates issues you care about in an evolving scientific and technological landscape, and 2) interrogates your understanding of the mechanisms governing the progress of history.

Math – Core math I must have to graduate. Ugh!

I’m very excited about all of these classes! Except for the math. I haven’t done this type of math since my advanced math classes in high school. But, that was back in the ice age, man! My soon to be 20-year-old, Gigi, and I will both graduate in spring 2026!

This summer I tried to get as much as possible done: long walks in treasured spaces, submitting poetry and short stories to lit magazines, Lillian’s appointments (and mine), deep cleaning and organizing around the house, especially Lillian’s room, my to do list and to do pile, and meeting up with friends. I didn’t get to everything, but at least now I have the energy. I have a day and a half to knock out a bit more!

I really only had energy the last half of the summer. Here’s to feeling better, having the energy to move, writing, and learning, and to accidentally finding out that ADHD meds are magic!

Clinical Dosage Map – Chromosome 18

August 18 2025

Posting this once more to be sure as many folks as possible see it:

Here’s the link for the FB live discussing the Clinical Dosage Map and an image of the first page of Lillian’s dosage map in the comments.

Slowly Expanding Cloud

August 22 2025

This cloud slowly expanded last night. Lillian and I enjoyed watching it for about 15 or 20 minutes. Also looks cool in black and white.

Starfish Tattoo for the 18p- Girl in My Life

August 21 2025

For the Giggle Girl in my life – Lillian 🩷 … One for Gigi to follow on winter break or next spring. 🐌 or 🐙

How Many Different Photos of the Same Landscape

August 20 2025

Felt like being a bit more creative with the photo making this time. I love using the trees, rocks, flowers, and sun as props. I move myself around in different positions rather than the props. 💚

FHSD2 Screen – Chromosome 18 Clinical Research Center

August 19 2025

After 2 or so years, Lillian and I finally did the facial movement/speech function test for Chromosome 18 Clinical Research Center. This is a screen for FSHD2. (Not the best shirt, but she had to do some shoulder movements where the collar bone and shoulder bones could be seen.)

Also, ADHD meds are magic. I am getting so much done that’s been on my to do list forever. The End.

Kaleidoscope Sky

August 19 2025

Clouds and more clouds. All within about a 2 hour period. 💞